Recommended References and Resources on Students with Special Needs

PROJECT SCHOOL CARE
Project School Care is a program of Children's Hospital, Boston, which offers services in consultation, training and information nationally. Project School Care publishes a reference and guide book called Children Assisted by Medical Technology in Educational Settings: Guidelines for Care. This resource is specifically recommended for School Nurses serving students requiring skilled nursing care procedures. These guidelines are updated on a regular basis by medical, nursing, educational and legal experts from across the United States. All updates are provided as part of the original purchase.

To purchase a copy of Children Assisted by Medical Technology in Educational Settings: Guidelines for Care, write or call:

Project School Care
Gardner 6
300 Longwood Avenue
Boston, MA 02115
Phone: 617-735-6714
Fax: 617-735-7940

Additional References:

"A Practical Approach to Teaching Self-catheterization to Children with Myelomeningocele," Brown, J.P. (1990). Journal of Enterostomal Therapy, 17, 54-6.

AIDS/HIV: The Role of the School Nurse. (1990). Scarborough, ME: National Association of School Nurses, Inc. 201-883-2117

Care of a Percutaneous Endoscopic Gastrostomy (P.E.G.) and the Button Replacement Gastrostomy. (1987). Bard Interventional Products. (800) 826- BARD.

Clean Intermittent Catheterization. (1986) Video with manual. University of Colorado Health Sciences Center. Lawrence, KD: Learner Managed Designs, Inc.

"Developmental Assessment of the Technology-dependent Infant and Young Child," Ahmann, E. & Lipsi, K. (1992). Pediatric Nursing, 18 (3): 299-305.

Developmental Variations and Learning Disorders, Levine, M.D. (1987). Toronto: Educators Publishing Service, Inc.

Getting It Started and Keeping It Going: A Guide for Respiratory Home Care of the Ventilator Assisted Individual. (1987). Manual and video. Ventilator Assisted Care Program and Respiratory Care Department, Children's Hospital, New Orleans, LA.

Guidelines for the Delineation of Roles and Responsibilities for the Safe Delivery of Specialized Health Care in the Educational Setting. (1990). Joint Task Force for the Management of Children with Special Health Needs. Reston, VA: Council for Exceptional Children.

Guidelines for the Management of Students with Genetic Disorders: A Manual for School Nurses. Schwab, N. (Ed.). (1992). Box 682, Gorham, ME: New England Regional Genetics Group.

Healthy Care for Students with Disabilities; An Illustrated Medical Guide for the Classroom, Graff, J.C., Ault, M.M., Guess, D., Taylor, M. & Thompson, B. (1990). University of Kansas. Baltimore, MD: Paul H. Brookes Publishing Co.

Home Oxygen for Infants and Young Children (1988). Video and manual. University of Colorado Health Sciences Center. Lawrence KD: Learner Managed Designs.

How Schools Work and How to Work with Schools: A Guide for Health Professionals. (1990). Alexandria, VA: National Association of State Boards of Education. (703) 684-4000.

Integration Checklist: A Guide to the Full Inclusion of Students with Disabilities . (1990, Summer). New Hampshire Challenge. Family Support Bulletin. United Cerebral Palsy Association.

Managing the Student with a Chronic Health Condition: A Practical Guide for School Personnel, Larson, G. (Ed.). (Rev. 1990). North Branch, MN: Sunrise River Press.

Manual for Quality Nursing Intervention in the School, Hootman, J. (Rev. 1990). Multinomah Education Service District, School Health Services, 11611 NE Ainsworth Circle, Portland, OR 97220

Nursing Care of Infants and Children, fourth edition, Whaley, L. & Wong, D. (1991). St. Louis: Mosby Yearbook.

Nursing Guide to the Care and Maintenance of Hickman and Broviac Catheters. (1986). A Nursing Guide and a Video. Cranston, RI: Davol Inc. (800) 556-6275.

Pediatric Adaptive Technologies: Gastrostomy Tube Feeding. Zechman, R., Ross, A, & Watkins, J. (1986). Video and workbook. Seattle, WA: University of Washington.

Primary Care of the Child with a Chronic Condition, Jackson, P. & Vessey, J. (1992). St. Louis: Mosby Yearbook.

Serving Culturally Diverse Families of Infants and Toddlers with Disabilities. Anderson, P. & Fenichel, E. (1989). Washington, D.C.: National Center for Clinical infant Programs.

These Special Children: The Ostomy Book for Parents of Children with Colostomies, Ileostomies and Urostomies, Jeter, K.F. (1982). Palo Alto, CA: Bull Publishing Company.

Your Child Has a Tracheostomy: A Guide for Home Care, Crimlisk, J.T., Murray, S.V., Judas, M.L. Jorgensen, K.M., Thompson, J.A. (1990). Department of Health and Hospitals. Boston, MA: Boston City Hospital (617) 534-4030.

Your Complete Guide to Central Venous Catheters, Viall, C.D. (1990). Nursing 90. 2, 34-41